Warren and I spoke with oncology today to start considering all options for Jackson's treatment. Regardless of where we go, it seems the treatment will be the same; 6 weeks of radiation to his brain and spine, 3-4 week break, then 4-6 months of low dose chemo. We may have the ability to get on a study at St.Jude, but he would receive 4 months of high dose chemo, completely killing his immune system and then a stem cell transplant to bring back his immune system. This is experimental and has not yet been proven to work any better than the standard protocol for Jack's cancer. This seems a bit scary to us knowing the reaction his kidneys had with CT contrast. It seems that the doctors believe Jack's cancer is of average risk that can be effectively treated with radiation and chemo while being able to be at home between treatments. Warren and I will take him to UCSF for a second opinion with a brain tumor specialist just to make sure we are all on the same page.
Jackson is still doing better day by day. He is sedated slightly but still responds sometimes when we talk to him. The breathing tube may possibly come out tomorrow but we will have to wait and see.
Thank you so much for everyone's support for our family and our son. Words cannot explain our gratitude for the help and generosity that our family has received. We are truly blessed and so grateful.
Jenise
Friday, July 31, 2009
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could you please contact me at ckh8116@yahoo.com? I can mobilize a large healing network taht will work on Jackson, and they have done great things, occasionally miraculous things. . .but I need better infromation than I see here.
ReplyDeleteIts up to you, but these folks have done some amazing things....
by the way---regarding previous comment on the healing network, there is no charge whatsoever for this--it is done gratis. This is not a scam or moneymaking thing.
ReplyDeleteSending healing and prayers from Australia to your sweet sweet boy. Much love to all your family....in particular, your golden boy.
ReplyDeleteSending love and prayers to you all daily! Praying that god will lay his healing hands on Jack! Love you...Autumn
ReplyDeleteWe're praying for Jackson, for Janise and Warren. I hope the fundraiser BBQ will be a great success. I'll be there to support the effort. Prayer groups all over this area are praying for Jackie and the whole family.
ReplyDeleteNancy Reyka
Prayers and Healing energy are on their way NOW to young Jackson from Patrick (Divine Healer) in northern NSW. Blessings also for Mum and Dad-hang in there, keep visualising light around your son and keep telling him you love him very much.
ReplyDelete