MRI on Thursday

Hello Everyone!

Things have been moving in the right direction for Jackson lately. We just finished up his IEP (individualized education plan) at his school. He is getting the extra help he needs. He has an aid in his classroom with him for 30 minutes a morning. He goes to resource at 10:30 MTW, speech therapy on Thursday, and adaptive PE on Friday mornings. He goes to school until 11am MTWTH, and still 10:30 on Fridays. He is doing well so I hope that he gets caught up more by the spring.

Jackson started his thyroid and cortisol meds early November, so it has been a month already. His energy level is great. He is actually fighting me on naps now rather than putting himself down at noon! His mood swings have improved quite a bit also. It is so nice to finally get back the old Jackson that we knew prior to his diagnosis. Although he is still having some balance issues, overall, his coordination is getting better and he is gaining some endurance now due to his energy levels. The doctors will be checking his hormone levels again this week to make sure he is properly dosed. We went to CCS ( California Children's Services) on Friday for PT and OT therapy evaluations. We go back again this Friday and possibly once more next week. They will then meet him again for clinic in January where the team makes their recommendations for treatment. The occupational therapist said she is 99% positive he will qualify for services. If so, Jackson will most likely take a bus from his school to therapy. He is looking forward to that!

Now here is the big one this week. His MRI on Thursday the 9th. They will be doing his 3 month surveillance MRI of his brain and spine. As you all can imagine this is a stressful time for all of us. He is a year post surgery and 6 months post treatment. Please say a prayer for Jackson to have a clear scan so we can get through the holidays with nothing else weighing on our minds. Thank you!

Jenise