Lab Work

Hi All,

Just need to check in and update everyone on all the issues plaguing us these days. Jackson had some lab work done a couple weeks ago to check his thyroid and his cortisol levels. They both came back low. He is now taking Levothyroxin for his thyroid once a day and hydrocortisone for his cortisol levels twice a day. They said it will take a month for him to reach normal levels. It seems as though already, he has had more energy, and today I had to fight him to take a nap. Ok, we're ready, bring on the old Jackson that used to run circles around us. It is going to be so nice to see him get to be more like his old self. We are hoping the extra energy will help him with his balance also and with school.
Speaking of school, Jackson's IEP is scheduled for Tuesday. There they will give us all of his results for his testing that they have been working on. I am anxious to hear what they have to say. Report cards will be coming home soon. I am wondering what his teacher has to say. I am not very fond of her and I will be doing research on his teachers in the future. She seems nice enough with the kids, but she doesn't communicate well with me. I ask her alot how Jackson is doing, and she says ok. I am waiting to see what his testing shows, and to see if she actually will have some input at the IEP. Maybe actually get some feedback being that she is the one that spends the most time with him. Mrs. Rigali is the Resource Specialist that I am hoping will be spending time with him on a daily basis. She is wonderful. He is going to need extra help, it is just a matter of how much. Jackson's behavior reports for September and October were excellent. Not as much as one warning in the last two months. Way to go Jackson!! Just wish I could say the same for home! He spends alot of time tormenting his sisters!

Ok, so Jackson's next MRI is on December 9th at 10:30am with an oncology appointment to follow at 2pm for results. As you can imagine, I am already getting anxious. He did have two new spots of radiation injury show up in August whereas the last few we were keeping an eye on have nearly disappeared. I hope this is the case for December. No new radiation injury, and out with the old also. I am also trying to coordinate his Neurology appointment for that day or close by so that we don't have to make another trip. The neurology doc will be assessing his need to continue on the Topamax that was prescribed for seizures and migraines that happened when he got so sick in August. He hasn't had any issues since then, so I am hoping they will want to wean him off it so to lessen the number of pills he takes a day. Did I mention he is swallowing his hormone supplements? They are not large tablets at all, but they don't make a kid friendly version either. The thyroid pill, he has to take with water 30 minutes prior to eating. He amazes me every step of the way! Can everyone please start praying for Jackson's clear scan on the 9th? The prayer sent his way are always so appreciated. Thank you!

Jenise