Jackson's First Week of School

Hello Everyone,

On Wednesday August 18th, Jackson started his first day of kindergarten. He did very well. The drop off went well although Hayden and I both left crying. Neither one of us wanted to leave! My tears were happy tears and Hayden's were sad because she wanted to find a desk to sit at also. She had even picked out a new backpack when Jackson picked out his. On his second day, I got a call about 15 minutes prior to class letting out because Jackson had fallen and bumped his head. He was okay, but traumatized. He couldn't tell me how he fell, so Friday morning I asked his teacher, Mrs. Ortiz what had happened. She said he was sitting next to her one minute and the next he was on the ground holding his head and crying. She thinks that he had fallen asleep at the picnic table. Poor guy, he has been really tired this last week. Friday morning he was really tired and emotional. He didn't want to go to school, he only wanted to go home. I had to drop him off and then get Madison to school in Nipomo by 8:50, so I didn't have much time to stay with him. I had to leave him sitting at the picnic table next to the playground where they play until it is time to line up. I had to leave him crying by himself. He watched over his shoulder as we drove away. It was so heartbreaking. I'm sure that it will get easier as time goes on. He was really tired and emotional when I picked him up on Friday also. His body is going to take time to be able to adjust and gain the endurance that he needs to be his best for 31/2 hours a day. His teacher said that this year may not be academic for him. It may only be him getting used to the classroom environment and being able to just be there. That is fine with us. We want him to succeed, but if it is at his own pace, then that is how it has to be.

Overall, Jackson has been doing well. He is getting a chub layer that is so cute on him. His hair is coming back fairly well. I did clean the sides up a bit with the clippers, so he has a little fade going on. He was very excited to do school shopping for the first time. We went and he helped pick out some pretty cool clothes. He also picked out his Toy Story backpack. I think we are going to have to get him a rolling backpack because he has a hard time with walking and carrying his backpack on his back. His balance is fairly unstable, especially when he is tired. His appetite is going strong and he has not needed any anti-nausea meds lately. We stopped the Zofran about 3 weeks ago. He doesn't have to take his antibiotic any more that he has been on since December. Whoo Hoo! He is med-free! We will be traveling to SF on September 7th for another MRI. It is hard to believe that it has been almost 3 months already. I am already having some "scanxiety" about the scan coming up. We have been able to kind of forget about everything the last couple of months and now we are back to reality. I guess this will be the cycle for the next two years although I am hoping it will get better as time goes on. They are also going to recheck his hormone levels.

With all that said, I would like to ask for lots of prayers for Jackson's scan and that his overall experience at school be a positive one. Every one's support and prayers have gotten us to where we are now, so as you can imagine, they are really important to us. We are always truly grateful.
I will keep everyone posted with his progress and scan results as they come.

Take care,
Jenise